Category Archives: News

V-A-C-A-T-I-O-N-!

It’s time! Time to pack your sunscreen, and trashy summer reads. To feel the wind in your hair. A pair of flip flops, oversized sunglasses, some shorts and you’re gleefully skipping out the door. But wait, this is not a party of one as it is in your daydreams. There are… Read more »

It’s IEP Time: 5 Tips to Get Ready!

A child’s individualized education plan (IEP) centers around a meeting in which a parent meets with several other people (the child’s general teacher, special education teacher, school representative, school psychologist, and possibly others) to discuss plans to help the child for the coming year. This should be a positive interaction,… Read more »

The 2016 PRISMS Conference

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As we landed in St. Louis very early on Thursday morning, another PRISMS conference was about to begin. This organization, founded by parents and researchers over 20 years ago, has created an amazing atmosphere where parents, kids diagnosed with SMS (Smith-Magenis Syndrome), siblings and researchers convene to educate, fellowship and enlighten… Read more »