Diary of a Special Needs Dad

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The perception of “dad’s place within the family” in America has evolved over time alongside changes in gender roles and society as a whole.  While this perception pertains to all fathers, everywhere, it goes double for father’s that parent children with special needs.  It is from this unique perspective that… Read more »

Diary of a Special Needs Sibling

The following narrative blends stories from our real Abram’s Bed families to fictionally capture the trials and successes we experience as special needs families. None of the names or situations is meant to resemble a specific reality, but the universal difficulties are intended to enlighten and endear. People tend to… Read more »

It’s IEP Time: 5 Tips to Get Ready!

A child’s individualized education plan (IEP) centers around a meeting in which a parent meets with several other people (the child’s general teacher, special education teacher, school representative, school psychologist, and possibly others) to discuss plans to help the child for the coming year. This should be a positive interaction,… Read more »

The 2016 PRISMS Conference

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As we landed in St. Louis very early on Thursday morning, another PRISMS conference was about to begin. This organization, founded by parents and researchers over 20 years ago, has created an amazing atmosphere where parents, kids diagnosed with SMS (Smith-Magenis Syndrome), siblings and researchers convene to educate, fellowship and enlighten… Read more »