Tag Archives: Smith-Magenis-Syndrome

Loving Learning for a Lifetime

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Summer learning loss. Words that strike fear in the hearts of every uber-busy parent. Have we languished in the lazy unstructured days of summer at the cost of our child’s education? Will they launch back into the school year excited and ready to dive into academia? Or have they overdosed… Read more »

Life Lessons from Abram – by Rose Morris

Summer Camp

 It’s Abram’s first day at a summer basketball camp and I’m fighting back tears, rocking, biting my finger. The boys have just gathered in a circle and Abram, has been scolded twice to be quiet and hold the ball still by a very no nonsense coach. It’s clear by his… Read more »

Being Social and It’s Not On Facebook

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Eye contact, showing interest, holding a conversation, Miss Manners may have gone by the wayside of the wall phone however good social skills have not! So how do we pry our kids away from the phones and video games to show them that social isn’t an app or on a… Read more »

Let the Storm Pass

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Hurricane Abram is gaining speed. I sighed then I yelled for him to get his bike put away and himself in the van for the umpteenth time. We were headed out and we were going to be late. Abram is very attached to his bike and likes to go at… Read more »

V-A-C-A-T-I-O-N-!

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It’s time! Time to pack your sunscreen, and trashy summer reads. To feel the wind in your hair. A pair of flip flops, oversized sunglasses, some shorts and you’re gleefully skipping out the door. But wait, this is not a party of one as it is in your daydreams. There are… Read more »

The 2016 PRISMS Conference

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As we landed in St. Louis very early on Thursday morning, another PRISMS conference was about to begin. This organization, founded by parents and researchers over 20 years ago, has created an amazing atmosphere where parents, kids diagnosed with SMS (Smith-Magenis Syndrome), siblings and researchers convene to educate, fellowship and enlighten… Read more »