Tag Archives: SMS

Let the Storm Pass

Hurricane Abram is gaining speed. I sighed then I yelled for him to get his bike put away and himself in the van for the umpteenth time. We were headed out and we were going to be late. Abram is very attached to his bike and likes to go at… Read more »

V-A-C-A-T-I-O-N-!

It’s time! Time to pack your sunscreen, and trashy summer reads. To feel the wind in your hair. A pair of flip flops, oversized sunglasses, some shorts and you’re gleefully skipping out the door. But wait, this is not a party of one as it is in your daydreams. There are… Read more »

The 2016 PRISMS Conference

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As we landed in St. Louis very early on Thursday morning, another PRISMS conference was about to begin. This organization, founded by parents and researchers over 20 years ago, has created an amazing atmosphere where parents, kids diagnosed with SMS (Smith-Magenis Syndrome), siblings and researchers convene to educate, fellowship and enlighten… Read more »