Tag Archives: SMS

The Ripple Effect

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Living the life of luxury, not really, the life of therapy, and chaos. Inconsistency was consistent in my house.  Modify, adjust, juggle etc.  Our son, Abram, never slept and that impacted me, my family, my friends, relationships, and job. (the energizer bunny that never stopped!) I knew I needed to… Read more »

Loving Learning for a Lifetime

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Summer learning loss. Words that strike fear in the hearts of every uber-busy parent. Have we languished in the lazy unstructured days of summer at the cost of our child’s education? Will they launch back into the school year excited and ready to dive into academia? Or have they overdosed… Read more »

Let the Storm Pass

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Hurricane Abram is gaining speed. I sighed then I yelled for him to get his bike put away and himself in the van for the umpteenth time. We were headed out and we were going to be late. Abram is very attached to his bike and likes to go at… Read more »

V-A-C-A-T-I-O-N-!

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It’s time! Time to pack your sunscreen, and trashy summer reads. To feel the wind in your hair. A pair of flip flops, oversized sunglasses, some shorts and you’re gleefully skipping out the door. But wait, this is not a party of one as it is in your daydreams. There are… Read more »

The 2016 PRISMS Conference

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As we landed in St. Louis very early on Thursday morning, another PRISMS conference was about to begin. This organization, founded by parents and researchers over 20 years ago, has created an amazing atmosphere where parents, kids diagnosed with SMS (Smith-Magenis Syndrome), siblings and researchers convene to educate, fellowship and enlighten… Read more »